Our progressive research plan:

Phase 1& 2

Survey and Factsheet - this is intended to provide information for patients who are living with the long term effects of Stevens – Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN).

Research phase 1 and 2 photo map


Phase 3

Medical Findings - It is hoped that should this be possible, it will be beneficial to many in the near future.

Research phase 3 photo map


The third phase of our research plan is already in progress by The Wolfson Centre for Personalised Medicine at the University of Liverpool. Though we do not fund this research, we work closely with their research team by referring SJS/TEN survivors interested in participating in this research as well as engaging with their Patient and Public Involvement (PPI) Meetings.