Thanks to The National Lottery Community Fund, SJS Awareness UK can support individuals with underlying conditions especially the BAME Community through the pandemic. PHEs report, Beyond the data: Understanding the…
COVID-19 mRNA Vaccine BNT162b2 concentrate for solution for injection has been given authorisation for temporary supply by the UK Department of Health and Social Care and the Medicines & Healthcare…
Following our awareness campaign launch last February at the House of Commons, Rt Hon Margaret Hodge MP lead a Westminster Hall debate on awareness and funding for the treatment of…
Thank you to everyone who gave their time to take part in our survey in December 2014. In total we had 35 submitted surveys - 27 from SJS/TEN survivors, and…
The next PPI meeting will be held on 24th September 2015 at 12 noon in our Barking office (our address is at the foot of this newsletter). The research team…
Our campaign launch at the House of Commons on 3rd February 2015 was sponsored by the Rt Hon Margaret Hodge MP, and following on from this she will now be…
Colette Ansell, the mother of an SJS survivor who is passionate about raising funds to support the awareness of this rare and complex condition, took on the challenge to participate…
Tuesday 3rd February 2015 saw the launch of the Stevens Johnson Sysdrome (SJS) Awareness Campaign in the House of Commons. A delegation led by a leading scientist in the field…
Professor Munir Pirmohamed, Director of theWolfson Centre for Personalised Medicine, is supporting Stevens-Johnson Syndrome awareness UK in their bid to receive government support for a national campaign aimed at educating…