On Thursday September 23rd we will be holding a Patient and Public Involvement Meeting via Zoom. All are welcome to join us. The meeting will begin at 12:30 with an…
Thanks to The National Lottery Community Fund, SJS Awareness UK can support individuals with underlying conditions especially the BAME Community through the pandemic. PHEs report, Beyond the data: Understanding the…
COVID-19 mRNA Vaccine BNT162b2 concentrate for solution for injection has been given authorisation for temporary supply by the UK Department of Health and Social Care and the Medicines & Healthcare…
Following our awareness campaign launch last February at the House of Commons, Rt Hon Margaret Hodge MP lead a Westminster Hall debate on awareness and funding for the treatment of…
Thank you to everyone who gave their time to take part in our survey in December 2014. In total we had 35 submitted surveys - 27 from SJS/TEN survivors, and…
The next PPI meeting will be held on 24th September 2015 at 12 noon in our Barking office (our address is at the foot of this newsletter). The research team…
Our campaign launch at the House of Commons on 3rd February 2015 was sponsored by the Rt Hon Margaret Hodge MP, and following on from this she will now be…
Colette Ansell, the mother of an SJS survivor who is passionate about raising funds to support the awareness of this rare and complex condition, took on the challenge to participate…
Tuesday 3rd February 2015 saw the launch of the Stevens Johnson Sysdrome (SJS) Awareness Campaign in the House of Commons. A delegation led by a leading scientist in the field…
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Professor Munir Pirmohamed, Director of theWolfson Centre for Personalised Medicine, is supporting Stevens-Johnson Syndrome awareness UK in their bid to receive government support for a national campaign aimed at educating…
The SJSawareness UK webiste is to see its 3rd face-lift since it was launched in 2009. The new website is to be launched in February 2015. This also coincides with…
Starting Point, which is part of the East Thames Group, has been supporting us since July 2013 with affordable 'hot-desking' facilities as well as training. This has rapidly impacted the…
A patient and public involvement (PPI) group was set up by the Wolfson Centre for Personalised Medicine at the University of Liverpool, who have been conducting research into drug safety…