Have you checked the

DRUG LEAFLET ?

Be aware while you medicate. To prevent drug reaction make sure you read the leaflet each time

Disseminate information about SJS/TEN to members of the public and professionals

SJS Awareness UK is a charitable company committed to raising awareness of SJS in the United Kingdom. The organisation provides support for survivors and their families to overcome the physical, emotional and psychological challenges they may experience following an episode of SJS/TEN. Our aim is to disseminate valuable information about SJS/TEN to members of the public and medical professionals regarding early recognition, available treatments and therapies that may prove beneficial to sufferers.

The organisation also has close links with the University of Liverpool, keeping in touch with the most up to date research being conducted in this area.

Support

Support survivors and their families to overcome emotional and psychological challenges they may experience following an episode of SJS/TEN.

Promote

Promote platforms for social inclusion to eradicate the feeling of isolation – Tele-support groups, local support groups and social media.

Provide

Provide information for support agencies, stakeholders and professionals to get involved with SJS/TEN survivors and work with them.

You have the power to help

What can you do ?

Your support will make a difference to being able to support survivors and spreading the word about SJS/TEN condition. Through your generosity we can drive the agenda of Supporting, Promoting and Providing.

I WANT TO HELP

Inside SJS Awareness

Connect with us by watching our stories, being aware of the signs and symptoms and ways you can volunteer and support us plus resource links and photo gallery

The key numbers

With over 6000 people affected in the last 10 years and many more suspected cases we need more support in creating awareness.

5 - 28

Latency period days

22%

Mortality rate

6000+

People affectted

30+

Volunteers

Latest news and updates

Stay informed with the latest news and updates about SJS/TEN, featuring insightful posts from our registered members. Join the conversation and discover valuable perspectives from our community.

House of Commons debate and campaign launch

Our campaign launch at the House of Commons on 3rd February 2015 was sponsored by the Rt Hon Margaret Hodge MP, and following on from this she will now be applying for an adjournment debate in Parliament after the summer recess. This will be to bring our petition before the House to highlight our concerns regarding the diagnosis and treatment of SJS/TEN, the need to improve the level of knowledge and awareness amongst health professionals, and to improve aftercare for those a

Westminster Hall debate on awareness and funding

Following our awareness campaign launch last February at the House of Commons, Rt Hon Margaret Hodge MP lead a Westminster Hall debate on awareness and funding for the treatment of SJS?TEN on Wednesday 13th July from 11-11.30am. You can also watch the debate live on the Parliament TV website here ( http://www.parliamentlive.tv/Commons ) Margaret Hodge MP will also be putting the debate up on her Facebook page and website after the debate.

Patient & Public Involvement Meeting September 2021

The meeting will begin at 12:30 with an introduction from Anita Hanson, Head Research Nurse at the Wolfson Centre for Personalised Medicine, who has been working in research to help SJS/TEN patients for many years. Christine Randall will speak about the Yellow Card Scheme for reporting adverse drug reactions and the Medicines & Healthcare Regulatory Agency (MHRA). Dr Dan Carr will talk about some of the current research taking place at the University of Liverpool that is help

COVID and Underlying Conditions Project with support from Big Lottery

The National Lottery Community Fund Thanks to The National Lottery Community Fund, SJS Awareness UK can support individuals with underlying conditions especially the BAME Community through the pandemic. PHEs report, Beyond the data: Understanding the impact of COVID-19 on BAME groups, found that the highest age standardised diagnosis rates of COVID-19 per 100,000 population were in people of Black ethnic groups. People of Bangladeshi ethnicity had around twice the risk of dea

Are you or someone you know allergic to any medication? Here is an opportunity to make a difference!

Your chance to support invaluable public health research into drug side effects: The Medicines and Healthcare products Regulatory Agency (MHRA), in partnership with Genomics England, have launched an exciting new research project called the Yellow Card Biobank. Yellow Card Biobank In the first part of the project, the Yellow Card Biobank aims to study the role genes play in [allopurinol-induced severe skin reactions including Stevens-Johnson Syndrome, Toxic Epidermal Necrolys

Survivors' Stories: Inspiring Hope and Resilience

When faced with rare and potentially life-threatening conditions like Steven Johnson's Syndrome and Toxic Epidermal Necrolysis (TEN), the journey to recovery can be daunting. However, amidst the challenges and hardships, there are stories of hope, resilience, and inspiration that shine through. These survivors' narratives not only shed light on the realities of these conditions but also serve as a beacon of strength for others going through similar struggles. The stories of s