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Friday, 15 July 2016 07:40

Westminster Hall Debate

Following our awareness campaign launch last February at the House of Commons, Rt Hon Margaret Hodge MP lead a Westminster Hall debate on awareness and funding for the treatment of…
Tuesday, 25 August 2015 13:14

Survey Results

Thank you to everyone who gave their time to take part in our survey in December 2014. In total we had 35 submitted surveys - 27 from SJS/TEN survivors, and…
Tuesday, 25 August 2015 13:12

Patient & Public Involvement Meeting (PPI)

The next PPI meeting will be held on 24th September 2015 at 12 noon in our Barking office (our address is at the foot of this newsletter). The research team…
Tuesday, 25 August 2015 13:11

House of Commons Debate

Our campaign launch at the House of Commons on 3rd February 2015 was sponsored by the Rt Hon Margaret Hodge MP, and following on from this she will now be…
Tuesday, 25 August 2015 13:09

Fundraising Update Summer 2015

Colette Ansell, the mother of an SJS survivor who is passionate about raising funds to support the awareness of this rare and complex condition, took on the challenge to participate…
Tuesday 3rd February 2015 saw the launch of the Stevens Johnson Sysdrome (SJS) Awareness Campaign in the House of Commons. A delegation led by a leading scientist in the field…
Thursday, 05 March 2015 00:00

Professor Munir Pirmohamed backs SJS

Professor Munir Pirmohamed, Director of theWolfson Centre for Personalised Medicine, is supporting Stevens-Johnson Syndrome awareness UK in their bid to receive government support for a national campaign aimed at educating…
The SJSawareness UK webiste is to see its 3rd face-lift since it was launched in 2009. The new website is to be launched in February 2015. This also coincides with…
Monday, 03 November 2014 00:00

Organisational status and funding update

Starting Point, which is part of the East Thames Group, has been supporting us since July 2013 with affordable 'hot-desking' facilities as well as training. This has rapidly impacted the…