SJS Awareness UK

SJS Awareness UK is a charitable company committed to raising awareness of SJS in the United Kingdom. The organisation provides support for survivors and their families to overcome the physical, emotional and psychological challenges they may experience following an episode of SJS/TEN. Our aim is to disseminate valuable information about SJS/TEN to members of the public and medical professionals regarding early recognition, available treatments and therapies that may prove beneficial to sufferers. The organisation
also has close links with the University of Liverpool, keeping in touch with the most up to date research being conducted in this area.

Support

Support survivors and their families to overcome emotional and psychological challenges they may experience following an episode of SJS/TEN

Promote

Promote platforms for social inclusion to eradicate the feeling of isolation – Tele-support group, local support group and social media

Provide

Provide information
for support
agencies to get involved
withSJS/TEN survivors and work with them

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Our mission

to bridge the gap for those affected by SJS and TEN through the provision of information and support from the point of diagnosis and through their recovery and adaptation process

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Over 6000 people affected in the last 10 years

Ways to support and be part of the fight

Know the signs of SJS/TEN, support the course or donate to us

BE AWARE
Know the facts
  • • Watch stories of SJS/TENS
  • • Download the fact sheet
  • • Video fact clips
DONATE
Options
  • • By Text
  • • Online via Paypal
  • • Charity Choice
GET INVOLVED
Sign up to help
  • • Volunteer to raise funds
  • • Help provide peer support
  • • Membership

Engage with us

Simple but effective ways you can make your presence felt right online by visiting the below

Photo gallery

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Volunteer to help

Volunteer

time


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Resource links

Resource

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Consultant database

Consultant

database


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Our Ethos

To ensure we do our best with every survivor we come into contact with to reach out and Support, Promote and Provide.

Twitter timeline

Latest news

Following our awareness campaign launch last February at the House of Commons, Rt Hon Margaret Hodge MP lead a Westminster Hall debate on awareness and funding for the treatment of SJS?TEN on Wednesda...

Thank you to everyone who gave their time to take part in our survey in December 2014. In total we had 35 submitted surveys - 27 from SJS/TEN survivors, and 8 from a f...